A drug that can save the lives of kids costs Rs 16 crore. What India can do A rare genetic disease causing muscular weakness, Spinal Muscular Atrophy can be fatal for children under the age of 2. The drug Zolgensma may be their only hope, but parents are forced to rely on crowdsourcing funds. DELVE PHARMA MONDAY,Continue reading “Save this girl let’s do it India”
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Hyderabad kid with rare genetic disease gets world’s costliest injection worth Rs 16 croreThree-year-old Ayaansh Gupta from Hyderabad received Zolgensma injection worth Rs 16 crore after his parents raised the required amount through crowdfunding. The funding was supported by several celebrities from film and cricket field.
Ayaansh Gupta, a three-year-old from Hyderabad with a rare spinal muscular atrophy (SMA), required an injection that cost Rs 16 crore for his gene therapy treatment. With at least 65,000 people donating through crowdfunding, the boy has now received the injection. Zolgensma, labelled as the “world’s costliest drug”, was imported from the US with donationsContinue reading “Hyderabad kid with rare genetic disease gets world’s costliest injection worth Rs 16 croreThree-year-old Ayaansh Gupta from Hyderabad received Zolgensma injection worth Rs 16 crore after his parents raised the required amount through crowdfunding. The funding was supported by several celebrities from film and cricket field.”